针对这种情况，世界血友病联盟在2013年发布了《血友病治疗指南》，鼓励血友病患者适当参与非接触式运动，包括：游泳、散步、高尔夫、羽毛球、射箭、骑行、划船、帆船和乒乓球等，以增强肌肉强度、骨密度、维持体重、降低糖尿病等疾病的发生率；同时，避免像橄榄球、足球等的接触式或碰撞激烈的运动[13]。另外，多项国际研究也表明，适当的体育运动，有助于提高血友病患者的生活质量、肌肉强度和减少关节出血[11, 14]。
血友病患者应当适当参与非接触式运动 | Pixabay
今天是第32个“世界血友病日”，世界血友病联盟（WFH）提出了“援助 团结”主题。从成立伊始，这个组织就旨在呼吁每一个人积极行动起来，加强公众对遗传性出血性疾病的认知，让世界各地的患者都能得到所需要的治疗和护理，无论他们生活在世界的哪个角落——
其实，每一种疾病患者都需要。
作者名片
作者：喵奴·Cathy
编辑：麦芽杨 Yuki
排版：凝音
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